The global status of genetic counselors in 2023: What has changed in the past 5 years?
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Author / Producer
Date
2024
Publication Type
Journal Article
ETH Bibliography
yes
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Abstract
Purpose
The profession of genetic counselors has existed for over 50 years. This article provides an update on the global state of the genetic counseling (GC) profession in 2022 and 2023.
Methods
We used a survey approach to collect data from individuals who were identified as being leaders in GC practice and/or education around the world.
Results
Based on responses provided between October 2023 and January 2024, we estimate that there are over 10,250 genetic counselors in over 45 countries around the world. These numbers have increased significantly in the past 5 years, when there were ∼7000 genetic counselors. Key factors identified as driving the increase in genetic counselors are the number of training programs that have developed (>130 globally, mostly at a master’s degree level) and a growing number of national biobanks and/or population screening programs that require GC as part of the process. There is tremendous variability in how genetic counselors are regulated, with only a few countries holding national statutory regulation processes. There are many commonalities, but the GC profession appears nuanced to their specific country and its wider socio-political context and history.
Conclusion
We hope that genetic counselors internationally will come together to assist each other in all aspects: training, statutory regulation, developing the workforce, and establishing GC as an academic discipline. We envision that establishing an international organization for the profession of genetic counselors might maintain such international connections and provide relevant data in future years.
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Publication status
published
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Book title
Journal / series
Volume
2 (S2)
Pages / Article No.
101887
Publisher
Elsevier
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Edition / version
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Software
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Date collected
Date created
Subject
Genetic counselor; International; Regulation; Workforce
Organisational unit
09614 - Vayena, Eftychia / Vayena, Eftychia
Notes
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