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dc.contributor.author
Kamaara, Eunice
dc.contributor.author
Kong, Camillia
dc.contributor.author
Campbell, Megan
dc.date.accessioned
2020-09-14T08:32:59Z
dc.date.available
2019-11-27T03:22:00Z
dc.date.available
2019-11-27T08:51:00Z
dc.date.available
2020-09-14T08:32:59Z
dc.date.issued
2020-09
dc.identifier.other
10.1111/dewb.12248
en_US
dc.identifier.uri
http://hdl.handle.net/20.500.11850/380674
dc.description.abstract
Psychiatric genomics research with African populations comes with a range of practical challenges around translation of psychiatric genomics research concepts, procedures, and nosology. These challenges raise deep ethical issues particularly around legitimacy of informed consent, a core foundation of research ethics. Through a consideration of the constitutive function of language, the paper problematises like‐for‐like, designative translations which often involve the ‘indigenization’ of English terms or use of metaphors which misrepresent the risks and benefits of research. This paper argues that effective translation of psychiatric genomics research terminology in African contexts demands substantive engagement with African conceptual schemas and values. In developing attenuated forms of translational thinking, researchers may recognise the deeper motivational reasons behind participation in research, highlighting the possibility that such reasons may depart from the original meaning implied within informed consent forms. These translational issues might be ameliorated with a critical re‐examination of how researchers develop and present protocols to institutional ethics review boards.
en_US
dc.language.iso
en
en_US
dc.publisher
Wiley
en_US
dc.subject
African perspectives
en_US
dc.subject
psychiatric genomics research
en_US
dc.subject
translation
en_US
dc.subject
informed consent
en_US
dc.title
Prioritising African perspectives in psychiatric genomics research: Issues of translation and informed consent
en_US
dc.type
Journal Article
dc.date.published
2019-11-14
ethz.journal.title
Developing World Bioethics
ethz.journal.volume
20
en_US
ethz.journal.issue
3
en_US
ethz.pages.start
139
en_US
ethz.pages.end
149
en_US
ethz.identifier.wos
ethz.publication.place
Oxford
en_US
ethz.publication.status
published
en_US
ethz.date.deposited
2019-11-27T03:22:05Z
ethz.source
WOS
ethz.eth
yes
en_US
ethz.availability
Metadata only
en_US
ethz.rosetta.installDate
2020-09-14T08:33:12Z
ethz.rosetta.lastUpdated
2020-09-14T08:33:12Z
ethz.rosetta.versionExported
true
ethz.COinS
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