“Hunting Down My Son’s Killer”: New Roles of Patients in Treatment Discovery and Ethical Uncertainty

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Author
Ienca, Marcellocc
Vayena, Effycc
Date
2020-03
Type
    Journal Article
Publication status
published
External links
Journal / series
Journal of Bioethical Inquiry
Volume
17(1)
Pages / Article No.
37 - 47
Publisher
Springer
Subject
Citizen science; Patient-led research; Biohacking; DIY; Self-experimentation; Autonomy; Right to science
Organisational unit
09614 - Vayena, Eftychia / Vayena, Eftychia  
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Citations
Cited 1 times in Web of Science
Cited 2 times in Scopus
ETH Bibliography
yes
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