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dc.contributor.author
Drewniak, Daniel
dc.contributor.author
Glässel, Andrea
dc.contributor.author
Hodel, Martina
dc.contributor.author
Biller-Andorno, Nikola
dc.date.accessioned
2021-03-08T10:01:52Z
dc.date.available
2021-01-26T17:07:35Z
dc.date.available
2021-03-08T10:01:52Z
dc.date.issued
2020-03
dc.identifier.issn
1438-8871
dc.identifier.other
10.2196/15772
en_US
dc.identifier.uri
http://hdl.handle.net/20.500.11850/465754
dc.identifier.doi
10.3929/ethz-b-000465754
dc.description.abstract
Background: Patient narratives are illustrative, individual accounts of patients’ experiences with certain health conditions. Web-based patient narratives have become widely available on the internet and in social media, as part of electronically available patient decision aids or Web-based databases. In recent years, the role of patient narratives as a source of information, insight, and support for both health care users and providers has increasingly been emphasized. Although the potential impact of patient stories has high immediate plausibility, it is of interest to know if this impact can be captured in quantitative studies. Objective: This review aimed to evaluate whether research-generated Web-based patient narratives have quantifiable risks or benefits for (potential) patients, relatives, or health care professionals. Methods: We searched the following databases from August 2017 to March 2019: Medical Literature Analysis and Retrieval System Online, PsycInfo, Sociological Abstracts, Web of Science, and EMBASE. Titles and abstracts of the retrieved studies were reviewed and assessed for the inclusion and exclusion criteria. Papers were included if they studied the following: (1) (potential) patients, relatives, or health care professionals; (2) the effects of Web-based patient narratives that were generated scientifically (eg, through qualitative research methods); and (3) were quantitative studies. Furthermore, 2 authors independently performed an assessment of the quality of the included studies using a validated checklist. Results: Of 4226 documents, 17 studies met the inclusion criteria. The studies investigated 10 different sources of Web-based patient narratives. Sample sizes ranged from 23 to 2458. The mean score of the quality assessment was 82.6 (range 61-100). Effects regarding five different purposes were identified as follows: provide information, engage, model behavior, persuade, and comfort. We found positive effects in every category and negative effects in one category (persuade). Several of the reported effects are rather small or were identified under specific experimental conditions. Conclusions: Patient narratives seem to be a promising means to support users in improving their understanding of certain health conditions and possibly to provide emotional support and have an impact on behavioral changes. There is limited evidence for beneficial effects on some outcomes. However, narratives are characterized by considerable heterogeneity and the investigated outcomes are hardly comparable with each other, which makes the overall judgment difficult. As there are numerous possible measures and purposes of narratives, quantifying the impact of Web-based patient narratives remains a challenge. Future research is needed to define the optimal standards for quantitative approaches to narrative-based interventions.
en_US
dc.format
application/pdf
en_US
dc.language.iso
en
en_US
dc.publisher
JMIR Publications
en_US
dc.rights.uri
http://creativecommons.org/licenses/by/4.0/
dc.subject
patient experiences
en_US
dc.subject
personal narratives as topic
en_US
dc.subject
systematic review
en_US
dc.title
Risks and Benefits of Web-Based Patient Narratives: Systematic Review
en_US
dc.type
Review Article
dc.rights.license
Creative Commons Attribution 4.0 International
dc.date.published
2020-03-26
ethz.journal.title
Journal of Medical Internet Research
ethz.journal.volume
22
en_US
ethz.journal.issue
3
en_US
ethz.journal.abbreviated
J Med Internet Res
ethz.pages.start
e15772
en_US
ethz.size
17 p.
en_US
ethz.version.deposit
publishedVersion
en_US
ethz.publication.place
Toronto
en_US
ethz.publication.status
published
en_US
ethz.leitzahl
ETH Zürich::00002 - ETH Zürich::00003 - Schulleitung und Dienste::00022 - Bereich VP Forschung / Domain VP Research::02803 - Collegium Helveticum / Collegium Helveticum
en_US
ethz.leitzahl.certified
ETH Zürich::00002 - ETH Zürich::00003 - Schulleitung und Dienste::00022 - Bereich VP Forschung / Domain VP Research::02803 - Collegium Helveticum / Collegium Helveticum
en_US
ethz.date.deposited
2021-01-26T17:07:43Z
ethz.source
FORM
ethz.eth
yes
en_US
ethz.availability
Open access
en_US
ethz.rosetta.installDate
2021-03-08T10:02:04Z
ethz.rosetta.lastUpdated
2022-03-29T05:39:58Z
ethz.rosetta.versionExported
true
ethz.COinS
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