Whose health record? A comparison of patient rights under national electronic health record (NEHR) regulations in Europe and Asia-Pacific jurisdictions
Metadata only
Date
2021-03Type
- Journal Article
ETH Bibliography
yes
Altmetrics
Abstract
In this paper, we compare four patient rights regarding data stored in NEHRs under nine European and Asia-Pacific jurisdictions. We aim to ascertain whether the success and failure of NEHR implementations could be attributable to differences in patient rights. We note that while there is a convergence of access controls, there is a divergence with respect to controlling third-party access and modifying patient data. Analysing these divergences through four bioethical principles defined by Beauchamp and Childress, we find claims of patient empowerment mask a neoliberal perspective of outsourcing responsibility to patients. Likewise, refusing sufficient granular control can contribute to patient mistrust.We argue that it is important to conceptualise NEHRs as a public good and design regulatory frameworks accordingly. Show more
Publication status
publishedJournal / series
Singapore Journal of Legal StudiesVolume
Pages / Article No.
Publisher
Faculty of Law, National University of SingaporeOrganisational unit
09614 - Vayena, Eftychia / Vayena, Eftychia
More
Show all metadata
ETH Bibliography
yes
Altmetrics